Last September 7th in Alani we joined the well known red tide. For us it is a very important and emotional day. It is the International Duchenne-Becker Muscular Dystrophy Awareness Day.
Duchenne-Beckers muscular dystrophy is a rare, degenerative disease with no cure, affecting 1 in 5,000 boys worldwide. It affects the X chromosome and therefore only affects male children. The muscles lack a protein called dystrophin which causes the muscles to regenerate.
Next year we will come back to let you know so that you can be part of this movement, you know that together we are stronger.
